Pages Menu
TwitterRssFacebook
Categories Menu

Posted by on Feb 14, 2011 in Current Info | 0 comments

The National Down Syndrome Society (NDSS) and its Partner Lettercase Celebrate the National Distribution of a New Down Syndrome Prenatal Booklet

This is very good news coming from the National Down Syndrome Society! I knew there would be a big announcement about Lettercase but was not sure the extent. Having NDSS partner with this cutting edge protection of the lives of future babies with Down syndrome is a huge boost in my book!

As a member of the Informed Decision Making Task Force, comprised of Down syndrome leaders around the country, I know that the quality of the material coming from Canister/Lettercase will provide accurate information on Down syndrome. This will lend itself to helping medical professionals become up to date with current and medically and socially accurate information to convey to their patients. Even in 2011, doctors are still encouraging their patients to terminate as the option to not parenting a child with Down syndrome or other pre-natally diagnosed conditions.

Between the Informed Decision Making Task Force and the excellent writers at Canister/LetterCase, and now along with the funding from the National Down Syndrome Society, we have the tools to help medical professionals and parents hear truth instead of myths!

~ Nina

The National Down Syndrome Society (NDSS) and its Partner Lettercase Celebrate the National Distribution of a New Down Syndrome Prenatal Booklet
NDSS Provides Funding for Revision of Lettercase Booklets Making Accurate, Up-to-Date, and Balanced Prenatal Information Available for Medical Professionals and Families.
New York, NY (January 27, 2011). The National Down Syndrome Society has joined forces with Lettercase, an independent non-profit clearinghouse of information about genetic conditions, in an effort to ensure that expectant couples learning about a diagnosis of Down syndrome receive accurate up-to-date and balanced prenatal information. An updated edition of the prenatal booklet titled, Understanding a Down Syndrome Diagnosis, will be available on January 31, 2011, including a nationwide distribution of 10,000 complimentary copies funded by the National Down Syndrome Society and the Joseph P. Kennedy Foundation.
The revised booklets were created with input and consensus from both the medical and Down syndrome communities, including the American College of Medical Genetics, the American Congress of Obstetricians and Gynecologists, the National Society of Genetic Counselors, the National Down Syndrome Congress, and, of course, the National Down Syndrome Society.
Since 2006, NDSS has been at the national forefront of the effort to provide reliable information to physicians and medical experts about the capabilities and achievements of people with Down syndrome. Through a generous donation from the Joseph P. Kennedy Jr. Foundation, NDSS was able to focus efforts on the ever-changing landscape of prenatal testing, specifically regarding the type and quality of educational materials about Down syndrome available to medical professionals.
To complete this process, NDSS has awarded the funding to Lettercase to allow for the update, production and distribution of the first round of revised booklets. The initial goal is to distribute 10,000 booklets to the medical community, legislators, and local Down syndrome organizations through conferences, medical journals, and other forums. The ultimate goal is to have physicians and other medical professionals distribute quality information about Down syndrome to the 4.1 million women who will be offered prenatal testing annually.
NDSS is proud to have spearheaded an initiative of such compelling urgency and importance to the entire Down syndrome community.

Post a Reply