Dear Health Care Professional:
The birth of a child with Down syndrome can be an emotional and confusing time for new parents. When parents are told that their new baby has Down syndrome, it is not unusual for them to have feelings of sadness and disappointment, as well as anxiety about the future.
S.M.I.L.E. on Down Syndrome is a recognized 501c3 organization committed to spreading awareness and educating its members and the general public about all issues associated with Down syndrome. We can be a valuable part of your team in providing care to these patients. We provide the following services:
Accurate and Current Written Materials about Down Syndrome for New or Expectant Parents
Our packet for new parents contains information about local resources, health care guidelines, and articles, SMILE newsletters about upcoming programs and meetings, national Down syndrome organizations.
Mentoring and Emotional Support
Upon diagnosis, with permission from the parent, from the SMILE parent network group will visit the family to drop off written materials and answer questions. We host several meetings throughout the year to ensure parents are well-informed on relevant issues. (Medical guidelines, financial assistance, discipline issues, therapies and early interventions, advocacy and education).
Emergency or Crisis Intervention
SMILE can assist with financial crises and provide other resource information.
SMILE is available to provide educational opportunities regarding Down syndrome to parents and professionals at various times and events throughout each year.
The National Center for Prenatal and Postnatal Down Syndrome Resources at the University of Kentucky’s Human Development Institute oversees three medically reviewed programs that complement each other in providing important resources and information for new and expectant parents learning about a diagnosis of Down syndrome: Brighter Tomorrows, Lettercase, and Down Syndrome Pregnancy. These programs also offer valuable resources for medical professionals delivering those diagnoses.
The National Center provides this clearinghouse of professionally recommended resources so that medical practitioners, expectant parents, and new parents have access to accurate, up-to-date, and balanced information about Down syndrome. The activities of the National Center include the dissemination of free resources to medical providers and their patients; the development of new materials; and national medical outreach through journal publications and presentations at medical conferences.
Thank you very much for your assistance. We look forward to working with your team to provide the greatest quality of care to families caring for a member with Down syndrome. Please do not hesitate to contact us at (812) 307-9371 or firstname.lastname@example.org.