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What do I do first?

Some of the parents who also found out prenatally that they were carrying a baby with Down syndrome compiled a list of things you may want to do before your baby gets here.

  • Relax, enjoy the rest of your pregnancy and take care of yourself
  • Make sure your OB is supportive of your decision. If not, find one who is.
  • Call S.M.I.L.E. on Down Syndrome to get the New Parent Packet (812) 307-9371
  • Talk or meet with parents of a child with Down syndrome. S.M.I.L.E. can refer you to parents that have faced the same situation.
  • Meet a child with Down syndrome by attending a S.M.I.L.E. activity.
  • Read about Down syndrome, but make sure the material is current and reliable
  • Learn about your state’s early intervention services (First Steps – Indiana). Beginning at birth, babies with Down syndrome benefit from services such as physical therapy, occupational therapy, speech therapy, and developmental therapy.
  • If your baby has a potential heart issue or other medical concerns, ask to be referred to a specialist in that area
  • Remember that your unborn child is a baby first. The Down syndrome is only a part of who he or she will become.